Monday, October 26, 2009

Chiari Petition

A member of our church is soon to have neurosurgery to help with a Chiari Malformation from which he suffers. You may at this point be wondering what this is - and that's a reasonable question. Chiari Malformations (CMs) are structural defects in the cerebellum, the part of the brain that controls balance. And so the surgery will be serious, and we are praying for him, and look forwards to his treatment and recovery.

But he has asked that I sign a petition that asks the government to make information about the condition more readily available. The NHS websites contain little information about the condition, and sufferers not only have to face the illness but also the problems of communicating what it entails to families, friends - and of course employers, and that is once they have had the medical profession spot their symptoms and diagnose them accurately. It is not especially rare, but it does seem to lack focus, and the petition is asking that the oversight on the NHS websites is put right in order to help sufferers. I have gladly signed the online petition at the Prime Minister's Office. Here is the link - you fill the form in, then they send an email which you click onto and your name appears at the bottom of the petition.

If we can do some good for people who need help, we should. I encourage you to take two minutes now and make a difference.

1 comment:

theMuddledMarketPlace said...

cartainly finding info about it seems to be tough- i couldn't understand most of what's available online and i'm fairly savvy medically

have signed!